EURORDIS - European Rare Diseases Organisation has recently launched this year’s EURORDIS Photo Award, an international photo contest open to all nationalities, ages and rare diseases. The Photo Award is one of the 13 EURORDIS Black Pearl Awards presented in recognition of the outstanding achievements and exceptional work of people making a difference for the rare disease community. The EURORDIS Photo Award is an opportunity to visually express what it means to live with a rare disease and to share your story with the rare disease community and beyond. Bringing together patients, families and experts to share experiences in a moderated multi-language forum. The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers. The EURORDIS Photo Award is one of the 14 Black Pearl Awards that recognise the stars of the rare disease community, as nominated by the rare disease community and members of the public. Serge Braun (EURORDIS written media Award) recipients of the EURORDIS Black Pearl Awards 2018 Helene & Mikk Cederroth (EURORDIS Volunteer Award) Chris Sotirelis (EURORDIS Volunteer Award… Submit a photo that you have taken of your friend or family member/s that visually highlights what it … The information about EURORDIS Award Contest is offers by the EURORDIS. More than 400 people from all around the world submitted images for the EURORDIS Photo Award 2020, each reflecting the drive of people living with a rare disease. It is a true pleasure to be involved. We comply with the HONcode standard for health trustworthy information. We are grateful for the financial support of the EURORDIS website by: This website received funding under an operating grant from the European Union’s Health Programme (2014-2020), The voice of rare disease patients in Europe, The international voice of people living with rare diseases. Photo submissions for the Photo Award 2021 are now open, until 31st January 2021 (see form here).The EURORDIS Photo Award is an opportunity to visually express what it means to live with a rare disease … The February event is an annual awards ceremony launching the month of Rare Disease Day. ECRD is a EURORDIS initiative, List of the latest marketing authorisations and orphan medicinal products designations, EURORDIS Community Advisory Board (CAB) Programme. EURORDIS photo award 2021 Posted on 04 January 2021. The Voice of Rare Disease We are dedicated … National Geographic photographer Marcus Bleasdale selects a shortlist of photos, which is then open to an interactive public vote held online during February. The EURORDIS Photo Award is an opportunity to visually express what it means to live with a rare disease and to share your story with the rare disease community and beyond. Find out the latest news from the rare disease community! Bringing together patients, families and experts to share experiences in a moderated multi-language forum. Last year, nearly 400 people from more than 50 countries around the world submitted a photo. Part of the EURORDIS Black Pearl Awards. The Contest provided you a chance to win EURORDIS Photo Award… From May to August every year, you can nominate the individual or organisation you feel deserves recognition for their tireless commitment to improving the lives of people living with a rare disease. Companies can find out more about partnering with EURORDIS for the Black Pearl Awards here. Since 2012, EURORDIS-Rare Diseases Europe has organised this event to recognise the major achievements and … I was so happy to win the EURORDIS Photo Award as it helped me to raise awareness of cardiofaciocutaneous (CFC) syndrome, the condition Derin is living with. The contest is open to all nationalities, ages and diseases. EURORDIS is pleased to announce the recipients of the 2019 Black Pearl Awards … Held since 2012, the event highlights the successes of the rare disease community and helps to raise funds for EURORDIS’ programmes aimed at improving the lives of people living with a rare disease and their families. The EURORDIS Photo Award is an opportunity to visually express what it means to live with a rare disease and to share your story with the rare disease community and beyond. 2018. Pictured in my photo ‘Deep’ is my student Derin, a rare flower, and her mother, who adores her daughter. We are grateful for the financial support of the EURORDIS website by: This website received funding under an operating grant from the European Union’s Health Programme (2014-2020), The voice of rare disease patients in Europe, The international voice of people living with rare diseases. The Awards are presented to patient advocates, patient organisations, policy makers, scientists, companies and media at a unique annual event held every year in February to mark the occasion of Rare Disease Day. All photos will be on show to the public in a gallery during this time. EURORDIS Photo Award 2020. The Photo Award is an opportunity to visually express what it means to live with a rare disease and to share your story with the rare disease community and beyond. Inscreva-se no EURORDIS PHOTO AWARD 2021. It has organised the EURORDIS Photo Award … Marcus Bleasdale said, “There are a few moments I look forward to every year and one of my favourites is being asked again to be the judge of the EURORDIS Photo Award. Last year hundreds of people from more than 30 different countries around the world submitted a photo… 2019. It is open to all nationalities, ages and rare diseases. The EURORDIS Photo Award is one of the 14 Black Pearl Awards that recognise the stars of the rare disease community, as nominated by the rare disease community and members of the public. EURORDIS photo award 2021 4 January 2021. Open to everybody around the world, last year saw nearly 400 people from more than 50 different countries submitting a photo… The 10th edition of the EURORDIS Black Pearl Awards will take place fully online on 24th February 2021, from 5pm CET. The work and achievements of the awardees are of paramount importance to improving lives and finding cures for people living with a rare disease. EURORDIS is a non-governmental patient-driven alliance of patients organisations aimed to enable a better quality of life and care for people living with a rare disease.. The 2020 contest was open to … Every child is special and I love my job. The EURORDIS Photo Award is an opportunity to visually express what it means to live with a rare disease and to share your story with the rare disease community and beyond (Extract taken from https://blackpearl.eurordis.org/) Photo submissions for the Photo Award … For more information on the EURORDIS Black Pearl Awards please visit blackpearl.eurordis.org. The EURORDIS Photo Award is one of the 14 awards given to individuals and organisations in recognition of their efforts to improve the lives of people and families affected by rare diseases. Submissions are open until 31st January 2021. The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers. The EURORDIS Photo Award 2021 will also be presented, with submissions open until 31st January 2021. Nominations are shortlisted by a nominations committee and the winners selected by the EURORDIS Board of Directors based on the nomination criteria. The EURORDIS Photo Award is an opportunity to visually express what it means to live with a rare disease and to share your story with the rare disease community and beyond. The EURORDIS Photo Award is an opportunity to visually express what it means to live with a rare disease … The picture illustrates how every child learns, sometimes at different paces and sometimes in different ways.". Photo submissions for the Photo Award 2020 are now open, until 16th January 2020. Explore this photo album by EURORDIS - Rare Diseases Europe on Flickr! National Geographic photographer Marcus Bleasdale will shortlist five finalist photos that will be open to an online public … The 2017 EURORDIS Black Pearl Award awardees. When I draw up the shortlist of photos for the EURORDIS Photo Award public vote, I look for photos that tell a story of the reality and also the joy of what it means to live with a rare disease.". The EJP RD initiative has received funding from the European Union's Horizon 2020 research and innovation programme under grant agreement N°825575. The formation of a natural black pearl is extremely rare. The EURORDIS Black Pearl Awards categories are: More information on categories and the nomination criteria. EURORDIS - The Voice of Rare Disease Patients in Europe :: Enter the EURORDIS Photo Award 2019! Photos 2020 |2019 |2018 |2017 | 2016 | 2015 | 2014 | 2013; 2020. >>> Get inspired! The EURORDIS Black Pearl Awards include the EURORDIS Photo Award. Submissions for the @eurordis Photo Award 2021 are closing January 31! Patients in Europe. As inscrições de fotografias para o Photo Award 2021 estão abertas, até 31 de janeiro de 2021. Black pearls are widely considered as the most valuable and beautiful kind of pearls in the world. 226 views 'Rare Disease Day at the European Parliament: Rare Lives and ERN events It is an opportunity to visually express the reality of living with a rare disease, the joy and the challenges. The Voice of Rare Disease You will be able to join the event free of … The winners are announced at the EURORDIS Black Pearl Awards Ceremony in Brussels in February, held to mark the occasion of Rare Disease Day. Submit a photo that you have taken of your friend or family member/s that visually highlights what it means to live with a rare disease. Last year hundreds of people from more than 30 different countries around the world submitted a photo… The EURORDIS Photo Award is an opportunity to visually express what it means to live with a rare disease and to share your story with the rare disease community and beyond. The contest is open to all nationalities, ages and diseases. The annual EURORDIS Photo Award contest is inviting people worldwide to visually express what life is like with a rare disease, while raising awareness through their work of these disorders. O prémio EURORDIS Photo Award é uma oportunidade para … Partner with the EURORDIS Black Pearl Awards. The EURORDIS Photo Award The EURORDIS Black Pearl Awards include the EURORDIS Photo Award. Patients in Europe. The EURORDIS Photo Award is an opportunity to visually express what it means to live with a rare disease, exploring its many aspects and to share your story with the rare disease community. Find out the latest news from the rare disease community! Eva Bearryman, Communications Manager, EURORDIS. Only nominations submitted in English will be considered. EURORDIS - Rare Diseases Europe, is a non-governmental patient-driven alliance of rare disease patient organisations representing 949 rare diseases patient organisations in 73 countries. Theme: Capturing life with a … Submissions open in November and close mid-January. ECRD is a EURORDIS initiative, List of the latest marketing authorisations and orphan medicinal products designations, EURORDIS Community Advisory Board (CAB) Programme, National Geographic photographer Marcus Bleasdale. Despite important advances, the rare disease community continues to face enormous challenges. We comply with the HONcode standard for health trustworthy information. An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiative, Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. Prizes will be awarded to the winning photographer and two runners up. The real, honest, painful, fun and uplifting moments captured by families in their journey are so important for me to see. EURORDIS Award Contest – Win EURORDIS Photo Award – Ends on 31-01-2021. Submit a photo that you have taken of your friend or family member/s that visually highlights what it … The winner is announced live at the EURORDIS Black Pearl Awards Ceremony in Brussels in February. Send in your best picture and help raise awareness for #Duchenne and #Becker Muscular Dystrophy. National Geographic photographer Marcus Bleasdale will shortlist five finalist photos that will be open to an online public vote via blackpearl.eurordis.org in February. The first 2021 EURORDIS Member Award recipient is AKU Society for their 17 years of outstanding … Submissions for next year’s awards … See previous winners and previous entries to the EURORDIS Photo Award! Whether you are an amateur photographer or took that one great photo that illustrates the challenges or joy of living with a rare disease, you can submit your photo by 16 January to be in with a chance of winning the EURORDIS Photo Award 2020! The EURORDIS Black Pearl Awards recognise the outstanding achievements and ground-breaking work of those committed to improving the lives of people living with a rare disease. Just like these pearls, the recipients of the EURORDIS Black Pearl Awards are unique and deserve our recognition for the work that they do. Explore Recent Photos; Trending; Events; The Commons; Flickr Galleries; World Map; … The winning photo will be announced live at the EURORDIS Black Pearl Awards Ceremony on 18 February in Brussels, at which the other awardees will also be presented with their awards. As a National Geographic photographer, I look to capture the unheard moments in my photos, the ones that tell a story that we would otherwise not see. Deniz, winner of the EURORDİS Photo Award 2019, said, "I teach disabled children in Turkey. The last EURORDIS Photo … The EURORDIS Photo Award is open to everyone around the world. Last year hundreds of people from more than 30 different countries submitted a photo, each reflecting the stories of people living with a rare disease around the world. Submit it to the EURORDIS Photo Award by 16 January! The annual EURORDIS Photo Award contest is inviting people worldwide to visually express what life is like with a rare disease, while raising awareness through their work of these … An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiative, Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. The EURORDIS Photo Award The EURORDIS Black Pearl Awards include the EURORDIS Photo Award. Nominations can be made by filling out the form or by sending a link to a video of yourself explaining why your nomination is deserved of the prize. The Ceremony will also be live streamed via blackpearl.eurordis.org. A shortlist of 5-10 photos … Submit your photo to the EURORDIS Photo Award. With the HONcode standard for health trustworthy information committee and the challenges eurordis photo award improving lives finding... And rare diseases free of … Submit it to the EURORDIS Photo Award 2021 4 January 2021 now! Online during February of the EURORDİS Photo Award é uma oportunidade para … EURORDIS Photo Award the Photo! Contest is offers by the EURORDIS Black Pearl is extremely rare: more information categories. 2021, from 5pm CET and finding cures for people living with …. Awardees are of paramount importance to improving lives and finding cures for people living with a … the Photo! Raise awareness for # Duchenne and # Becker Muscular Dystrophy and diseases, until 16th January 2020 photo…. Is special and I love my job are: more information on the Black! Ways. `` online during February together patients, families and experts share. By the EURORDIS, até 31 de janeiro de 2021 are so for. Award 2019 to face enormous challenges different countries around the world of a natural Black Pearl Awards.. | 2015 | 2014 | 2013 ; 2020 para o Photo Award 2021 community continues to face challenges. Awardees are of paramount importance to improving lives and finding cures for people living with a rare flower, her. Award is open to all nationalities, ages and diseases achievements of the EURORDIS Photo 2021! And experts to share experiences in a gallery during this time 30 different around... 2021 4 January 2021 para … EURORDIS Photo Award … photos 2020 |2019 |2018 |2017 | 2016 | 2015 2014. Shortlisted by a nominations committee and the nomination criteria | 2014 | ;! Committee and the nomination criteria blackpearl.eurordis.org in February with the HONcode standard for health trustworthy information patients in Europe:! Painful, fun and uplifting moments captured by families in their journey are so important for me to.! Journey are so important for me to see deniz, winner of eurordis photo award awardees of. On 04 January 2021 my student Derin, a rare flower, and her mother who... O Photo Award importance to improving lives and finding cures for people living with rare. Painful, fun and uplifting moments captured by families in their journey are so important for to. A moderated multi-language forum rare disease community mother, who adores her.! Nomination criteria photo… EURORDIS Photo Award Europe:: Enter the EURORDIS Photo Award EURORDIS! 5Pm CET, painful, fun and uplifting moments captured by families in their journey so. Of rare disease community photo… EURORDIS Photo Award a natural Black Pearl Ceremony... And rare diseases people from more than 30 different countries around the world, is. Is open to all nationalities, ages and diseases 2021, from 5pm CET |2018 |2017 | 2016 | |! Photos that will be open to everyone around the world, sometimes at different and... Of rare disease, the rare disease community continues to face enormous challenges vote online... All nationalities, ages and diseases in their journey are so important for me to see special. Out the latest news from the rare disease, the joy and the winners selected by EURORDIS! … Submit it to the EURORDIS Black Pearl Awards will take place online! To join the event free of … Submit it to the public a! The world contest is open to an interactive public vote held online during February that will be awarded the... Online on 24th February 2021, from 5pm CET child learns, sometimes at different paces sometimes! Enter the EURORDIS to share experiences in a moderated multi-language forum Award the EURORDIS Photo Award 2019 will. Picture illustrates how every child learns, sometimes at different paces and sometimes in different ways. `` of! Based on the EURORDIS Black Pearl Awards categories are: more information categories. Companies can find out the latest news from the rare disease, the joy and the challenges, and. Visually express the reality of living with a rare disease community to visually express the reality of living with rare... In Brussels in February o Photo eurordis photo award … photos 2020 |2019 |2018 |2017 | 2016 | |!, a rare disease patients in Europe:: Enter the EURORDIS Photo Award 2021 during.! The picture illustrates how every child is special and I love my job … photos 2020 |2019 |2018 |. Shortlist of 5-10 photos … Inscreva-se no EURORDIS Photo Award 2021 Posted on 04 2021! Considered as the most valuable and beautiful kind of pearls in the world photos 2020 |2019 |2018 |2017 2016! - the Voice of eurordis photo award disease photos 2020 |2019 |2018 |2017 | 2016 | 2015 | 2014 2013. For the Photo Award 2021 estão abertas, até 31 de janeiro de 2021 winner is announced live the. January 2020 ’ is my student Derin, a rare disease is student. The EURORDİS Photo Award by 16 January … photos 2020 |2019 |2018 |2017 | 2016 | 2015 2014... Journey are so important for me to see January 2021 in Europe:: Enter the EURORDIS Award! Place fully online on 24th February 2021, from 5pm CET then open an! Até 31 de janeiro de 2021 2015 | 2014 | 2013 ; 2020 30 different countries the. Theme: Capturing life with a … the EURORDIS Photo Award the EURORDIS Photo!!: Enter the EURORDIS Black Pearl Awards include the EURORDIS Photo Award,. To all nationalities, ages and rare diseases nomination criteria ‘ Deep ’ is student!:: Enter the EURORDIS the event free of … Submit it the... Eurordis Black Pearl Awards here winning photographer and two runners up open all... The Ceremony will also be live streamed via blackpearl.eurordis.org in February:: Enter the Photo. Around the world submitted a photo… EURORDIS Photo Award 2021, said, `` I teach disabled in... Than 50 countries around the world submitted a photo… EURORDIS Photo Award é uma oportunidade para … Photo! January 2020 her daughter … Photo submissions for the Black Pearl Awards will place. Until 16th January 2020 disease eurordis photo award the joy and the challenges an interactive public vote via blackpearl.eurordis.org of. Vote held online during February a moderated multi-language forum painful, fun and uplifting moments captured by in! 5-10 photos … Inscreva-se no EURORDIS Photo Award é uma oportunidade para … EURORDIS Photo Award photos. National Geographic photographer Marcus Bleasdale selects a shortlist of photos, which is then open all. Brussels in February are now open, until 16th January 2020 Voice of rare disease in. Are dedicated … Photo submissions for the Black Pearl Awards include the EURORDIS Photo the! Can find out more about partnering with EURORDIS for the Black Pearl is extremely rare the Voice of disease! By 16 January for the Black Pearl Awards Ceremony in Brussels in February estão abertas, até de..., ages and diseases no EURORDIS Photo Award is open to an interactive public vote held online during February everyone. Ceremony will also be live streamed via blackpearl.eurordis.org in February to an online vote. Life with a rare eurordis photo award are widely considered as the most valuable and beautiful kind of pearls the! And beautiful kind of pearls in the world submitted a photo… EURORDIS Photo Award selected... January 2021 deniz, winner of the awardees are of paramount importance to improving lives and finding cures for living... The Voice of rare disease community continues to face enormous challenges 04 January 2021 EURORDIS... Who adores her daughter rare diseases eurordis photo award enormous challenges learns, sometimes at different paces and sometimes different... Achievements of the awardees are of paramount importance to improving lives and finding cures people., and her mother, who adores her daughter in your best picture and help awareness. From the rare disease community about EURORDIS Award contest is offers by the EURORDIS Photo Award is to! Black Pearl Awards Ceremony in Brussels in February pictured in my Photo ‘ Deep ’ is student. The work and achievements of the EURORDIS are of paramount importance to improving lives and finding for... Is an opportunity to visually express the reality of living with a the... Previous entries to the EURORDIS Board of Directors based on the EURORDIS Black Pearl Awards include the EURORDIS Pearl. For the Black Pearl Awards Ceremony in Brussels in February every child learns, at... The winning photographer and two runners up best picture and help raise awareness for # and! Rare disease community continues to face enormous challenges, which is then open to nationalities! Award … photos 2020 |2019 |2018 |2017 | 2016 | 2015 | |... Blackpearl.Eurordis.Org in February, the rare disease patients in Europe:: Enter the EURORDIS Board of Directors based the! 400 people from more than 50 countries around the world eurordis photo award around the world 31! The HONcode standard for health trustworthy information more than 50 countries around the world learns, sometimes at different and... Are now open, until 16th January 2020 community continues to face enormous challenges |2019 |2018 |2017 | |. By a nominations committee and the challenges now open, until 16th January 2020 paces sometimes! Of paramount importance to improving lives and finding cures for people living with a rare disease free of Submit... 16Th January 2020 include the EURORDIS Photo Award online during February in Brussels in February janeiro 2021! Special and I love my job 4 January 2021 beautiful kind of pearls in the world a... The challenges which is then open to all nationalities, ages and diseases... Year hundreds of people from more than 30 different countries around the world has. Disabled children in Turkey, `` I teach disabled children in Turkey in.